Maria Llera Guantes
Madrid, Spagna
Teaming Manager di 1 Gruppi
Teamer in 1 Gruppi
Dona ogni mese: 2 £ a 2 Gruppi
Da 29-06-2020 ha contribuito 104 £
Gruppi che amministra
2.617 € Totale raccolto
36 Teamer
Teaming Manager dal: 29/06/2020
Iria is a small girl diagnosed with Foxg1 Syndrome. This rare disease is a mutation in the Foxg1 gene that affects brain development in its earliest stage causing irreparable damage. Iria has a brain injury called Pachygyria along with dyskinetic cerebral palsy and epilepsy. Our little girl needs therapies to advance her development, so we collect funds. Can you help us ??? We keep walking! For more information: www.elsenderodeiria.com
Gruppi ai quali partecipo
3.614 € Totale raccolto
190 Teamer
Teamer da: 15/04/2023
A cure for our children now exists based on gene therapy (FRF-001). It was developed in a laboratory in the United States, privately funded by parents and investors from around the world. This gene therapy will enable our children affected by FOXG1 syndrome to improve their quality of life, correct their brain malformations, and begin to reach developmental milestones like other children: walking, talking, etc. Will you help us raise funds?