Maria Llera Guantes
Madrid, Espagne
Teaming Manager de 1 Groupes
Teamer de 1 Groupes
Chaque mois il/elle apporte 2 £ à 2 Groupes
Depuis le 29-06-2020 il/elle a donné 104 £
Groupes qu'il/elle dirige
2 617 € récoltés
36 Teamers
Teaming Manager depuis : 29/06/2020
Iria is a small girl diagnosed with Foxg1 Syndrome. This rare disease is a mutation in the Foxg1 gene that affects brain development in its earliest stage causing irreparable damage. Iria has a brain injury called Pachygyria along with dyskinetic cerebral palsy and epilepsy. Our little girl needs therapies to advance her development, so we collect funds. Can you help us ??? We keep walking! For more information: www.elsenderodeiria.com
Groupes auxquels il/elle participe
3 614 € récoltés
190 Teamers
Teamer depuis : 15/04/2023
A cure for our children now exists based on gene therapy (FRF-001). It was developed in a laboratory in the United States, privately funded by parents and investors from around the world. This gene therapy will enable our children affected by FOXG1 syndrome to improve their quality of life, correct their brain malformations, and begin to reach developmental milestones like other children: walking, talking, etc. Will you help us raise funds?