Maria Llera Guantes
Madrid, Spanien
Teaming-Manager von 1 Gruppen
Teamer in 1 Gruppen
Spendet jeden Monat: 2 £ für 2 Gruppen
Seit 29-06-2020 gespendet: 104 £
Teaming-Manager in folgenden Gruppen
2.617 € Gespendet
36 Teamer
Teaming-Manager seit: 29/06/2020
Iria is a small girl diagnosed with Foxg1 Syndrome. This rare disease is a mutation in the Foxg1 gene that affects brain development in its earliest stage causing irreparable damage. Iria has a brain injury called Pachygyria along with dyskinetic cerebral palsy and epilepsy. Our little girl needs therapies to advance her development, so we collect funds. Can you help us ??? We keep walking! For more information: www.elsenderodeiria.com
Mitglied in folgenden Gruppen
3.614 € Gespendet
190 Teamer
Teamer seit: 15/04/2023
A cure for our children now exists based on gene therapy (FRF-001). It was developed in a laboratory in the United States, privately funded by parents and investors from around the world. This gene therapy will enable our children affected by FOXG1 syndrome to improve their quality of life, correct their brain malformations, and begin to reach developmental milestones like other children: walking, talking, etc. Will you help us raise funds?