Maria Llera Guantes
Madrid, Espanya
Teaming Manager de 1 Grups
Teamer de 1 Grups
Cada mes aporta 2 £ a 2 Grups
Des del 29-06-2020 ha aportat 104 £
Grups que lidera
2.617 € Recaptats
36 Teamers
Teaming Manager des de: 29/06/2020
Iria is a small girl diagnosed with Foxg1 Syndrome. This rare disease is a mutation in the Foxg1 gene that affects brain development in its earliest stage causing irreparable damage. Iria has a brain injury called Pachygyria along with dyskinetic cerebral palsy and epilepsy. Our little girl needs therapies to advance her development, so we collect funds. Can you help us ??? We keep walking! For more information: www.elsenderodeiria.com
Grups on participa
3.614 € Recaptats
190 Teamers
Teamer des de: 15/04/2023
A cure for our children now exists based on gene therapy (FRF-001). It was developed in a laboratory in the United States, privately funded by parents and investors from around the world. This gene therapy will enable our children affected by FOXG1 syndrome to improve their quality of life, correct their brain malformations, and begin to reach developmental milestones like other children: walking, talking, etc. Will you help us raise funds?