Madrid, Spain
Teaming Manager in 1 Groups
Teamer in 2 Groups
Contributes every month: £3 to 3 Groups
Since 30-05-2013 has contributed £354
Teaming Manager since: 30/05/2013
Fathers and mothers from all over Spain, aware of the seriousness of our children, we decided to fight to give them a better and hopeful future. That is why we have joined together in order to raise funds through the Duchenne Parent Project for research. Currently we have launched 22 research projects in our country aimed at finding a cure or improvement for this disease. Help us to follow, JOIN OUR CHALLENGE! desafioduchenne.org
Teamer since: 28/09/2014
Éste es Nacho, tiene 9 años y sufre la enfermedad de Dent. Ésta enfermedad minoritaria catalogada como "Grave" es una mutación en el cromosoma X que afecta al riñon y le produce la pérdida de sustancias por la orina tales como, cálcio, potasio, fostato, glucosa, agua, etc.. creándole problemas en su musculatura, sus huesos y su estabilidad. Si sólo podemos luchar por la investigación ... así lo haremos, a por todas Nacho !! Por sólo 1 € al mes puedes ayudarnos. Gracias por tu ayuda.
Teamer since: 26/10/2016
We are a non-profit entity with 27 years of experience, our headquarters are in Madrid but we work supporting families from all the autonomous communities. Our goal is to carry out the first specific residence for people with Prader Willi Syndrome. Help us to fulfill their rights, help us to give them a home!!