Nadieska Pereyra ferreira

Nadieska Pereyra ferreira

A Coruña, Espagne


Teaming Manager de 1 Groupes

Chaque mois il/elle apporte 1 £ à 1 Groupes

Depuis le 24-02-2020 il/elle a donné 53 £

Groupes qu'il/elle dirige

1

5 548 € récoltés

50 Teamers

Teaming Manager depuis :  24/02/2020

Asociación de afectados CDKL5

The CDKL5 Association is an NGO for patients with CDKL5 Deficiency Disorder, a genetic disease that causes epileptic encephalopathy and developmental delay with severe motor and cognitive impairment (including absence of speech, inability to walk, respiratory and muscle problems, etc.) It still has no cure, and currently, its treatment focuses on relieving the symptoms, mainly epilepsy. Scientists are investigating advanced therapies to modify the course of the disease. https://aacdkl5.org/