Nadieska Pereyra ferreira

Nadieska Pereyra ferreira

A Coruña, Espanya


Teaming Manager de 1 Grups

Cada mes aporta 1 £ a 1 Grups

Des del 24-02-2020 ha aportat 53 £

Grups que lidera

1

5.548 € Recaptats

50 Teamers

Teaming Manager des de:  24/02/2020

Asociación de afectados CDKL5

The CDKL5 Association is an NGO for patients with CDKL5 Deficiency Disorder, a genetic disease that causes epileptic encephalopathy and developmental delay with severe motor and cognitive impairment (including absence of speech, inability to walk, respiratory and muscle problems, etc.) It still has no cure, and currently, its treatment focuses on relieving the symptoms, mainly epilepsy. Scientists are investigating advanced therapies to modify the course of the disease. https://aacdkl5.org/