Jovana Reyes

I'm Martin, they call me Tintin, I'm 2 years old. I was born with some malformations and one of them was a cleft lip, for which they operated on me when I was 3 months old. They had given my parents full assurance that it would be a simple operation, but something went wrong and I ended up in the Ucip with mechanical ventilation and deep sedation, and one day, they accidentally extubate me and I went into cardiorespiratory arrest for 15 min, and because of that accident I have cerebral palsy.

Soy Gabriela, el 07/06/21la vida de nuestra familia cambio, fui diagnosticada de una enfermedad ultrarara, neurometabólica,y letal.Caracterizada por cataratas congénitas, pérdida auditiva neurosensorial, retraso grave del desarrollo, hipotonía muscular grave, así como anomalías del sistema nervioso central.No hay cura en la actualidad, y solo 6 casos descritos.En Navidad un post se hizo viral en instagram @princesagabrielita.Y un equipo de investigadores conctacto con mi familia.Nos ayudas??

Aitana nació sana pero una noche su vida cambió. Nuestro mundo dio un giro de 360° y nunca volvería a ser el mismo. Una sepsis meningocócica casi se lleva su vida, consiguió sobrevivir pero con secuelas irreversibles. Una amputación de una pierna y daños internos en la otra .Estamos centrados en su recuperación, en intentar que su vida sea lo más parecida a la que tenía antes.La pierna con daños internos está empezando a responder, poco pero firme.Os necesitamos!! Síguenos @ununicorniobrillante

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