José Ángel Aibar
Barcelona, Espanha
Teaming Manager de 1 Grupos
Contribui mensalmente: 1 £ para 1 Grupos/projetos sociais
Desde 12-05-2020 contribuiu 38 £
Grupos de que é líder
24 523 € Arrecadados
331 Teamers
Teaming Manager desde: 12/05/2020
The Dravet Syndrome Foundation transforms lives affected by this rare and severe childhood disease described in 1978. Dravet syndrome, a severe myoclonic epilepsy with mutations in the SCN1A gene, causes frequent seizures, developmental delays, orthopedic problems, speech difficulties, autism spectrum disorders, and growth and nutrition issues. We offer emotional support, research, and awareness efforts to bring hope. Join us and be the change!