Barcelona, Espanya
Teaming Manager de 1 Grups
Cada mes aporta 1 £ a 1 Grups
Des del 12-05-2020 ha aportat 38 £
Teaming Manager des de: 12/05/2020
The Dravet Syndrome Foundation transforms lives affected by this rare and severe childhood disease described in 1978. Dravet syndrome, a severe myoclonic epilepsy with mutations in the SCN1A gene, causes frequent seizures, developmental delays, orthopedic problems, speech difficulties, autism spectrum disorders, and growth and nutrition issues. We offer emotional support, research, and awareness efforts to bring hope. Join us and be the change!