Fundación Síndrome de Dravet

Madrid, Espanha

Teaming Manager de 1 Grupos

Contribui mensalmente: 1 £ para 1 Grupos/projetos sociais

Desde 29-03-2024 contribuiu 4 £

Grupos de que é líder


22 976 € Arrecadados

311 Teamers

Teaming Manager desde:  29/03/2024

1€ per month for Dravet syndrome research. Will you join us?

The Dravet Syndrome Foundation transforms lives affected by this rare and severe childhood disease described in 1978. Dravet syndrome, a severe myoclonic epilepsy with mutations in the SCN1A gene, causes frequent seizures, developmental delays, orthopedic problems, speech difficulties, autism spectrum disorders, and growth and nutrition issues. We offer emotional support, research, and awareness efforts to bring hope. Join us and be the change!