Fundación Síndrome de Dravet

Madrid, Spanien


Teaming-Manager von 1 Gruppen

Spendet jeden Monat: 1 £ für 1 Gruppen

Seit 29-03-2024 gespendet: 4 £

Teaming-Manager in folgenden Gruppen

1

22.976 € Gespendet

311 Teamer

Teaming-Manager seit:   29/03/2024

1€ per month for Dravet syndrome research. Will you join us?

The Dravet Syndrome Foundation transforms lives affected by this rare and severe childhood disease described in 1978. Dravet syndrome, a severe myoclonic epilepsy with mutations in the SCN1A gene, causes frequent seizures, developmental delays, orthopedic problems, speech difficulties, autism spectrum disorders, and growth and nutrition issues. We offer emotional support, research, and awareness efforts to bring hope. Join us and be the change!