Yo Nemalínica Asociación
Madrid, Spanien
Teaming-Manager von 1 Gruppen
Seit 22-10-2018 gespendet: 58 £
Teaming-Manager in folgenden Gruppen
10.780 € Gespendet
159 Teamer
Teaming-Manager seit: 22/10/2018
We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es