MGS mividaconjunior
Madrid, Spain
Teaming Manager in 2 Groups
Contributes every month: £2 to 2 Groups
Since 01-09-2019 has contributed £133
Groups led
€1,967 Raised
35 Teamers
Teaming Manager since: 01/09/2019
Junior tiene una enfermedad genética llamada Síndrome FoxG1. Entre sus síntomas tiene microcefalia, epilepsia, retraso motor severo, discapacidad intelectual... Junior acude a un colegio de educación especial y además necesita terapias para seguir evolucionando. Actualmente existe una cura a este síndrome basada en terapia génica y los primeros ensayos clínicos llegarán muy pronto. Por eso queremos recaudar dinero y conseguir una cura para Junior. ¿Nos ayudas?
€3,614 Raised
176 Teamers
Teaming Manager since: 04/02/2022
A cure for our children now exists based on gene therapy (FRF-001). It was developed in a laboratory in the United States, privately funded by parents and investors from around the world. This gene therapy will enable our children affected by FOXG1 syndrome to improve their quality of life, correct their brain malformations, and begin to reach developmental milestones like other children: walking, talking, etc. Will you help us raise funds?